It was ongoing anemia that brought me to a hematologist, and also the first word out of his mouth on the day of my diagnosis:
“Anemia. Well, you have a kind of anemia that is unresponsive to treatment.”
“You have refractory anemia.”
Still listening. Snap judgment: doesn’t sound too scary.
“It is very unusual for your age. Refractory anemia [...]
I was away from home on business when I found the lump one morning in the summer of 2005 while showering. There’s no history of breast cancer in my family and I found it quite by accident, I recall it took a great deal of determination and focus to get through my work and [...]
Cancer runs in my family, though not in first degree relatives. My grandfather died of lung cancer. My second cousin on mom’s side was diagnosed with breast cancer at age 45, and died at 49. Herceptin wasn’t around yet. She was brilliant and young, I miss her. Her mother passed not long after from breast [...]
I was driving in my car on May 3rd, 1998 when I felt a dull ache in my groin. It felt like a bit of cramp, so I wasn’t too worried about it. The following day, when I got up, the ache was back. With every day that passed the pain increased. After about a [...]
I’m not going to edit this, these words are meant to be just what they are…my thoughts at this very moment….a stream of consciousness writing about a friend.
Today I ask that we take a moment, not of silence but of celebration, to remember one of the most amazing ‘Survivors’ whom I have ever met: Mike [...]
“Self Advocacy” in “High Quality” Medical Institutions and the importance of making YOUR VOICE heard.
An Essay on medical “ignorance” when in a facility “unfamiliar” with YOUR medical history.
By Michael D. Tufo, R.T.(CT) ARRT
(Synovial Sarcoma/Lung Mets “Survivor” and Medical Imaging Professional.)
TO begin with: I have been in the field of Medical Imaging for well over [...]
Stage IV colon cancer.
Eleven years ago these were words that filled my life with fear. They evoked thoughts of suffering. A bald head. Nausea. Fatigue. And even death.
In the years since those words and my life first intertwined, I’ve learned that other things cause greater fear, that suffering is not what I’ve done, that bald heads can be covered – or proudly displayed [...]
The “Testicle Tour” came to my attention early in 2009. I’d just joined Facebook to raise my profile. I lost both testicles 22 years ago and am on a mission. My sister says I am obsessed ! She may well be right.
Three months after I lost my testicles, I made a decision to abandon the [...]
A Story of Hope
My cancer journey began in Oct. 2000. I was a stay at home mom with a five year old son. My husband and I had just found out we were expecting another baby. We were very excited and looking forward to the new addition to our family. I was only four weeks [...]
Every survivor has a story. This is mine. I worked for two years as a physical therapist before my life changing conversation with my PCP (Primary Care Physician). Before I get into that let me tell you a little bit about myself. I’m the consummate underdog. “You’re too small to play sports.” “Your GPA isn’t [...]
July 21st, 2003 was the date. It’s funny because I actually have to double check the date. I know it’s July, and I know it’s 20-something but I can never remember the exact date. Not sure what that means, but I’ll take as a good sign. Anyway, that’s when I found out I had breast [...]
This is the first entry into the ‘Articles’ section of “Voices of Survivors”. I have asked Brad, the Founder of “First Descents”, to share his story of developing his organization and what makes it so successful for those ‘Survivors’ who take part in the challenge. So without further ado, I give you Brad Ludden.
The word survivorship gains new meaning after hearing “You Have Cancer.” I had survived many things in the 31 years before those words….being thrown from a horse, an automobile accident, toxemia and the premature delivery of both daughters, and even a pulmonary embolism. Nothing could have prepared me for the decade that would follow those [...]
Today in the Written Word’, we have something a little different. Today, Gayle Weisman, who was the 47th ‘Survivor’ to share her ‘voice’ on camera, has contributed three of her wonderful poems. Each one truly captures what each of us has felt at one point or the other more than likely.
After Cancer Avalanche
A rush of [...]
In part, the past six years have been an absolute blur. One minute I was in complete control of my life, and the next I was spiraling out of control into chaos. The irony being, of course, that control is one of the biggest illusions. At twenty eight, I was diagnosed with Hodgkin’s lymphoma. It [...]
When I had asked Jomaly to submit a poem for the “Written Word” she had told me about the first piece: “I’ll Be Fine” that she had written during her treatment. I had asked to also contribute a piece that was written from her perspective today on being a ‘Survivor’. Below you will see her [...]